Community resources support adherence to treatment for childhood cancer in El Salvador
Keywords:
Abandonment of treatment, Adherence, Childhood cancer, Community resources, Developing countries, Parents experiencesAbstract
Objective. In order to reduce nonadherence and treatment abandonment of children with cancer in El Salvador, institutions located nearby the patients’ homes were involved to provide support. Methodological approach: Health clinics and municipality offices in the patients’ communities were asked to assist families who were not promptly located after missing hospital appointments, or those whose financial limitations were likely to impede continuation of treatment. Data was collected about the number of contacted institutions, the nature of help provided, staff’s time investments, and parents’ perceptions about the intervention. Findings: Local institutions (133 from 206 contacts) conducted home visits (83), and/or provided parents with money (55) or transportation (60). Parents found this support essential for continuing the treatment but they also encountered challenges regarding local institutions’ inconsistencies. Nonadherence and abandonment decreased. Implications. Economic burden was reduced on both the families and the hospital. Involvement of external institutions might become regular practice to support families of children with cancer.
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